Still home and still feeling well. My counts were down a bit at my appointment
on Friday (my ANC dropped about 200 points, but I’m still above 1000 overall,
so that is good!) The NP that we saw at
the clinic said that it is somewhat common for counts to kinda drop a bit when
they grow too quickly (Kyle’s cells were going gangbusters J)
I have been getting out and walking around the
neighborhood early in the morning or late in the afternoon for the past week
and its wonderful to get fresh air & enjoy everyone’s nicely manicured
yards! Since I’m not allowed to do any
gardening this year, I’m enjoying all of my neighbors flowers! Definitely looking forward to being able to
plant annuals and a vegetable garden again next year!
My home IV fluids got decreased a bit this week,
which is good news! Now instead of
infusing a whole liter of fluids I’m down to half a liter (still the same
amount of magnesium in there though).
The NP at the clinic also mentioned that if I continue to do well that I
might be able to start taking oral magnesium (instead of needing to do it via
IV infusion) sometime next month. That
would be awesome because the sooner I can get switched over to all oral meds
and get off the IV meds the better. That
will also help me show my doc that I’m doing well and hopefully he’ll give me
clearance to go visit my coworkers at work, start driving again, and possibly
even return to work by the end of summer/early fall!?! We’ll see!
I’m optimistic because everything has been going pretty well so
far! My rash is getting better on my
neck/upper back. Its still there on my
arms but the topical steroid cream seems to be keeping it under control for the
most part. I’m VERY pleased with this as
I’ve been able to avoid oral steroids so far!
WOO HOO
-Chellie
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